This month's infusion day was extra complicated.
First, the shipment of plasma was delayed due to the ice storm. (But it arrived.)
Then, I was in town ALL DAY the day before my infusion. I am to be hydrated, but I hesitated to drink much water while I was in meetings and on the road and taxiing children.
On top of all that, our housecleaner, who had not been able to come for 5 1/2 weeks, was finally able to come ... during my infusion, which meant that I needed all surfaces clear before I was hooked up to the IV. (And after 5 1/2 weeks of no accountability that comes from having her come, there were lots of covered surfaces...)
Lastly, Jim left to load hogs for market before the children went to school. I enjoy it when he's able to take them to school on Infusion Day. And, morning routines didn't go as well without him here to back me up.
But ... I set the alarm for 5, got up and started drinking water and clearing surfaces. I brought down my IV pole and bag of supplies. BK got the Sharps container out from its way-up-high place before school.
All the surfaces were clear (the couch was a laundry couch and the last few items were thrown into a bag), and I had eaten a boiled egg and string cheese, and prepared a bowl of fresh fruit to eat mid-infusion.
Just before taking the children to school, I took my pre-medication (tylenol & benadryl). We listened to Psalms 25 & 26 in the van. (LM enjoyed it more when I told her the Getty girls' mommy was the one reading it.) I turned the dishwasher on, filled my water bottle, and made a cup of tea. And my nurse arrived promptly at 8.
Jim was in and out. The housecleaner was here from 10-12.45. I had several phone calls. I had to answer the routine questions about my current health for the nurse's charting. She took my vitals every 15, and then 30 minutes. She kept changing bottles on the IV pole (my prescription just increased, so I have a third bottle now). I laid down on the couch, and my nurse covered me with two blankets. I turned the Abiding Radio app on the stereo speakers. I was in and out of sleep. And at 1 PM, my nurse left, and I was left with a tight band of coban around my hand, and hopefully enough immunity-giving medication in my body to keep me infection free for the next month.
I thawed a chicken patty and a serving of sweet potato, and microwaved some frozen broccoli, ate lunch, and then it was almost time to pick up the children from school.
We stopped by the library and picked out some DVDs because I just wanted to sleep. But first, we gathered everything we need to take out the door with us on Saturday morning (for swim lessons, basketball game, & a birthday party), and everything they need to get dressed on Sunday morning, and BK did his Awana homework.
Zzzzzzzz.
Next month, during Infusion Day, I have a video visit with my Chicago rheumatologist. My nurse is curious and will enjoy that. I have been blessed with an amazing home nurse. If I could stay awake, we could chat for 5 hours straight about fascinating topics. :)
